Category Archives: Uncategorized

November 1, 2018

The following text has been copied from a Facebook post on my personal profile that has now been set to private. It is part of a series of posts providing details about the first part of my daughter’s fight with Transverse Myelitis. 

Looks like we are coming off the vent today!



Our warrior princess is doing great off the tube so far. Her mood has improved significantly and she is using her right arm a lot more now that she doesn’t have tubing in the way.

They have warned us that it is a possibility that her condition could deteriorate so the plan is just to chill out and have fun today.

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October 31, 2018

The following text has been copied from a Facebook post on my personal profile that has now been set to private. It is part of a series of posts providing details about the first part of my daughter’s fight with Transverse Myelitis. 

My sweet girl had a rough night. Today marks one month in the hospital, and I can tell you our girl is soooooo over it.

While the air on her belly has slowed down a bit, the pain in her spine has returned. She has been on a fentanyl drip for a while and they have been weening her off of it, so Dr. Merritt thinks the pain could be from the lower fentanyl.

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October 26, 2018

The following text has been copied from a Facebook post on my personal profile that has now been set to private. It is part of a series of posts providing details about the first part of my daughter’s fight with Transverse Myelitis. 

We have had a very rough night here in the PICU.

Over the last two days, Annadelle has started complaining of significant back pain despite being on Presidex and Fentayl. The bolus doses of both seem to not do much good in helping to calm her or ease the pain much. At one point tonight, Chris could not calm her at all because she was crying so much from the back pain.

Her doctors are not sure what is causing this onset of increased pain. Chris and I suspect there is something going on in her abdomen because for the last two days, they have had to pull a lot of air off her stomach through her NG tube. For reference, prior to this week they had pulled a maximum of 3 syringes of air over one shift, now it is about 7 syringes of air over a course of 1-2 hours. She will have an X-ray of her abdomen done in about an hour. Hopefully that will let us know if it is something from her abdomen or if we need to look for another cause of the pain.

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October 22, 2018

The following text has been copied from a Facebook post on my personal profile that has now been set to private. It is part of a series of posts providing details about the first part of my daughter’s fight with Transverse Myelitis. 

My beautiful friend Jacie Owens Williams is hosting a Lularoe fundraiser for our sweet princess.

If I understand correctly, for all items sold during the fundraiser, Lularoe will match the amount raised as a donation to us.

Please help me in spreading the word about this fundraiser by sharing this post and inviting your friends to this online fundraiser.

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October 10, 2018

The following text has been copied from a Facebook post on my personal profile that has now been set to private. It is part of a series of posts providing details about the first part of my daughter’s fight with Transverse Myelitis. 

I’m finally leaving the hospital grounds for the first time in over a week. Baby girl said she wants soup from Panera, so mom is making it happen.

Child life services brought her some Play-doh and she is loving it. She’s using her right arm a lot more, even lifting it up as the picture shows.

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