Category Archives: Uncategorized

November 17, 2018

The following text has been copied from a Facebook post on my personal profile that has now been set to private. It is part of a series of posts providing details about the first part of my daughter’s fight with Transverse Myelitis. 

I think it’s safe to say she feels pretty good.

November 15, 2018

The following text has been copied from a Facebook post on my personal profile that has now been set to private. It is part of a series of posts providing details about the first part of my daughter’s fight with Transverse Myelitis. 

We are still playing the waiting game today. Children’s of Birmingham is currently full and they are diverting to other hospitals. We have been approved to go there, but from what I understand we are waiting to see if our insurance will pay for us to stay here until Children’s gets a bed. Our option might be to go home and then travel to Birmingham when a bed is open. It all depends on what insurance will pay for.

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November 14, 2018

The following text has been copied from a Facebook post on my personal profile that has now been set to private. It is part of a series of posts providing details about the first part of my daughter’s fight with Transverse Myelitis. 

Our sweet girl is in great spirits this morning even after being stuck for another IV. Dr. Maertens decided to do another round of IVIG this morning so we had to poke her again. She handled it like a champ.

The social worker came by and said she is waiting to hear back from KKI. If we can’t get in to KKI inpatient, we will definitely be going to Birmingham for inpatient rehab.

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November 11, 2018

The following text has been copied from a Facebook post on my personal profile that has now been set to private. It is part of a series of posts providing details about the first part of my daughter’s fight with Transverse Myelitis. 

W E E K E N D U P D A T E

➡️ Dr. Merritt is busy down in the PICU so we have a new attending this weekend and remainder of the week (Dr. Goslings). She is working on weening us off the duo tube and methadone. We were going to come off methadone today, but I mentioned her heart rate has been running 130’s-140’s even when she is calm so Dr. Goslings decided not to ween her today. She thinks the high heart rate could be a result of narcotic withdrawal. As far as her tube goes, she is taking all of her medicines by mouth (which she hates because they taste terrible). Now we just have to get her to eat a little more. I suspect they will ween down her night feedings tomorrow and that may help her eat more during the day.

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November 2, 2018

The following text has been copied from a Facebook post on my personal profile that has now been set to private. It is part of a series of posts providing details about the first part of my daughter’s fight with Transverse Myelitis. 

Words can’t describe how proud I am of my punkin’ today!

PT/OT came in to work with her and she rocked it! She sat up on the side of the bed for FIVE minutes. The longest she could do a few weeks ago was one minute without supporting her own head. Today she held her head up all on her own!!! This is a huge step for her.

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