Hi, I’m Neeli. And this is my daughter, Annadelle.
I’m a wife, a mom, and a God-fearing woman chronicling my life online. If I had to describe myself in one minute or less, I’d make sure to mention I’m an advocate for justice reform, I have an unhealthy obsession with Starbucks coffee, Game of Thrones, and doggos, and that I’m learning how to function after my daughter’s diagnosis of Acute Flaccid Myelitis.
I created this blog in order to keep track of Annadelle’s recovery progress, not only for my own records but also with the hope I can help other parents dealing with the same diagnosis. I have been working to include helpful information for parents whose children are still in the acute phase and beyond. I’ve tried to include information I wish I would have known early on because, honestly, I had no idea and finding an accurate source for information was close to impossible.
If you aren’t familiar with Acute Flaccid Myelitis (AFM), it is a very rare neurological disorder that is often described as “the modern-day polio”. To date, less than 400 people have ever been officially diagnosed with AFM. AFM usually presents with back and/or neck pain, headache, fever, and can eventually lead to paralysis. This is due to the development of lesions on the myelin sheath of the spine, blocking messages sent from the brain to the rest of the body. The degree of paralysis is different in every patient. In Annadelle’s case, she was paralyzed from the neck down.
Little is known regarding the causes or treatment of AFM. Recovery rates of victims differ significantly- some patients make a full recovery while others may not recover at all. We are believing in God to heal Annadelle completely, as we know He will use our story as a testimony to many others.
Our story begins on September 27, 2018 when Annadelle first began showing signs of illness. After visiting five medical facilities, she was finally diagnosed with AFM. On October 1, 2018 she was paralyzed from the neck down and was put on a ventilator for 19 days. The ventilator has since been removed and we have been visiting rehab facilities in an attempt to teach Annadelle how to walk again.
Thanks for stopping by my little portion of the internet. I hope you stick around a while.
Find Annadelle’s story across social media by searching the hashtag #annadelleyeah
How can I help?
We have been inundated with offers of support from friends, family, and even strangers. Each day I receive new messages and friend requests from folks who have found our story and want to show some love to Annadelle and our family, so I’d like to toss out a few ways you can show your support if you feel led to.
Funds donated through GoFundMe are being used to provide Annadelle with the care she needs and is also allowing us to pay our regular bills while we are with her in the hospital and on through rehab.
We have created a medical supplies wish list with items that are needed for Annadelle’s at-home therapy gym. If you know of somewhere we can find these items used at a cheaper price, please contact us and let us know.
We are using a portion of the money donated to give back to the Ronald McDonald House Charities. RMHC of Mobile has been kind enough to allow us a low-cost place to stay as we have endured this struggle.
The button above will take you to the Amazon Wish List of the RMHC of Mobile. Items purchased from the wish list will be sent directly to the facility to help the numerous families whose children are receiving treatment in Mobile.
We believe prayer has the power to change the worst diagnosis. If you could say a sweet prayer for our baby girl, we’d be forever grateful.
If you have any questions that I haven’t answered on this page or blog posts, contact me!