November 12, 2018

The following text has been copied from a Facebook post on my personal profile that has now been set to private. It is part of a series of posts providing details about the first part of my daughter’s fight with Transverse Myelitis. 

“But that’s how amazing God is. He takes the pieces of our stories that seem like setbacks and uses them as the foundation to set others free.”

Karen Stott, author of An Intentional Life

We have had a good day today. Annadelle was able to show Miss Ali, Miss Kelly and Miss Kaelin how she could move one of her toes on her left foot. She is also moving her left arm more.

We were able to ween down the methadone again today. Dr. Goslings consulted with Dr. Merritt and determined her high heart rate isn’t from narcotics withdrawal- it might just be her normal heart rate. So now she’s down to methadone only once a day.

Annadelle was also fitted for a wheelchair today. We talked to a social worker and it seems getting items we need will be difficult due to fighting with insurance. For example, insurance won’t approve something as simple as a shower chair, so we will have to order one ourselves. It’s a pain, but we are thankful we are on our way out of the hospital.

Annadelle’s calorie count yesterday was only about 830, but she continually says she isn’t hungry. Her supplemental feeds they are giving at night will be from 8pm to 5am instead of 7pm to 7am. We are hoping this will cause her to be hungry enough to eat. But honestly, she is eating as she normally would at home- she’s just super picky and absolutely will not eat something she doesn’t like even if she was starving.

We are currently waiting to hear whether we will be inpatient or outpatient PT/OT. Once we know that, we will have a better idea of when we are going home. I am praying for Wednesday but at this rate, who knows!

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