The following text has been copied from a Facebook post on my personal profile that has now been set to private. It is part of a series of posts providing details about the first part of my daughter’s fight with Transverse Myelitis.
We have been inundated with calls, texts, and Facebook messages asking how to help.
If you know me well, you know the only person I typically ask for help from is my Mamma (bless her, I sure have asked for a lot over the last 33 years!), but I know I have to swallow my pride and allow people to help if they feel led to.
With that being said, we have pretty much everything we need here at the hospital. Our cousins Robin and Kelly made sure we weren’t hurting for good pillows and blankets, snacks, and random items needed so we are set for a while.
To be honest, the best way to help us directly is through our GoFundMe set up by our angel in disguise, Nicole. Neither of us are able to work while we are here so the donations are allowing us to pay our bills. Anything left over will be paid toward Annadelle’s medical bills that are expected to be hefty, not only from this visit but also outpatient therapy.
Many have told us they prefer not to donate through GoFundMe because of the fees and we completely understand. GoFundMe does keep a very small percentage of the money to process transactions. Before a few recent large donations, the fee was only around $120, much less than we anticipated. If you would rather donate through PayPal, our PayPal email is email@example.com.
If you feel led to help in other ways, I want to let you know about the Ronald McDonald House Charity. We have been blessed with a room at the Ronald McDonald House of Mobile. The staff is very empathetic and have checked on our girl’s status every chance they have. They have truly been a blessing to us and our family.
If you aren’t familiar with the Ronald McDonald House, it is an organization that provides free or low cost lodging to families who have been burdened by long hospital stays. RMH relies on the generosity of individual or corporate donations and the work of volunteers to provide this service to so many people in need.
When we first arrived, Chris made a comment to me, “I always heard about this place, but I never imagined we would need it.” That is so true. Never would I have thought I would have been dependent on such an organization. It has caused me to appreciate the many volunteers and donors who make it possible.
RMH operates near many major hospitals. Chances are you know someone who has stayed there. If you are able, I would ask that you donate your talent, time, or treasure to this organization near you.
Volunteer opportunities at RMH include:
– Assisting with light office work
– Cleaning and organizing common areas
– Assisting with Family Meals
– Greet and welcome visitors and family
– Help with grounds keeping and other gardening activities
– Donating needed household supplies according to each RMH’s “Wish List”
We have been blessed to participate in the Family Meal Program that provides hot meals for RMH guests. Local churches, civic organizations, or companies often provide hot meals, saving us hundreds of dollars in food costs while we are here. These organizations cook dinner for 45-50 guests at a time. I cannot properly express how wonderful this is to the house guests to be able to enjoy a meal with such supportive organizations. Once we leave the hospital, Chris and I plan to help organize families meals for the RMH here in Mobile.
Please join me in supporting this wonderful organization. I wish I would have known about the need much sooner, but it is never too late to help.
Ahhhhh-mazing news to report today!
This morning Chris and I left for a bit to go to the RMH and shower/rest. While we were there, my MIL & FIL stayed with Annadelle. They told us Dr. Maertens (Annadelle’s neurologist) came in to see her as he has been regularly. Each time he comes in, he asks Annadelle to move her fingers, hands, legs, etc. It is the same routine over and over so that he can measure her progress to see if she has increased or decreased mobility.
Up until today, she had lost mobility in her left leg and foot, but I am proud to report he was able to get her to move her left foot ever so slightly! My MIL and FIL witnessed it, as well. When I got back from RMH around lunch, I asked her to move her foot and she did. Praise God! He is healing my girl just as I had faith that he would!
Isn’t it amazing the things God does when we just believe in Him and trust in His goodness? Can I get an AMEN!?
Annadelle was surprised by her teacher Andrea Lynn today who brought her a TON of gifts from her classmates! Annadelle would always talk about how much she loved Mrs. Lynn when we would pick her up from school. We are so blessed to have such a wonderful community of folks in Orange Beach and all throughout Alabama.
We have been blessed to have had such a good day today.
We were really looking forward to Nurse Christy coming in tonight, but the charge nurse pulled her to the floor and assigned us with a new nurse. We’re spoiled now that we have had Christy because she is so attentive and goes above and beyond to make sure Annadelle is happy, comfortable and well taken care of. We actually sleep well when Christy is our nurse if that tells you anything, otherwise we take shifts sleeping and only get about 2-3 hours a piece.
If you could say an extra prayer tonight regarding something Mamma Bear here is sort of freaking out about, and that is the appearance of a slight fever during the last vital check. I have been terrified she is going to get another bug and have been watching her vitals like a hawk. It was only 99.7 and I know the nurses don’t worry until it is 100.4 or better, but this whole ordeal began with a fever of 99.7 so I think it is understandable that I worry.
Anyway, if you could pray specifically tonight that this “fever” won’t progress, I would appreciate it. We’ve been told if she continues to improve over the weekend, the tube may come out Monday or Tuesday…and Lord, we are ready for the tube to come out!
As usual, thank you for the continued support and prayers. We have been overwhelmed with all of the love and generosity of not only our friends, but those we have never even met.